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Youth research & policy

HeartWise Observatory.

Canada pilot · First report published

The HeartWise Observatory is a youth-focused research and knowledge hub dedicated to understanding the heart-health experiences, needs, and challenges of young people. By collecting community insights, sharing accessible research, and highlighting important trends, the Observatory helps turn evidence into stronger education, advocacy, and future HeartWise initiatives.

HeartWise Observatory — youth research and policy
Canada
Pilot jurisdiction
1 report
Understand · 2026
Aug 31, 2026
Evidence cutoff
28 sources
Every number cited
About

Track. Understand. Act.

Three connected parts — data, research, and policy. Nothing here is invented, every number carries its source, and where the evidence runs out, the Observatory says so.

Youth-focused, youth-led

Research framed around the heart-health experiences, needs, and challenges of young people — and driven by them.

Verified, always

The first phase draws only on existing published data from trusted public sources, cited every time.

Built to expand

Canada is the pilot jurisdiction; the focus can move to a new country without rebuilding a thing.

Track

Explore the evidence.

Three things from the 2026 report you can play with. Each carries the report’s own source and limitation — the Observatory never shows a number without them.

Explore 01

Age bands do not line up across Canada’s cardiovascular evidence sources

Drag the slider to any age and see which of the seven Canadian evidence sources include it — and whether it falls inside the Observatory’s own 12–29 window. No two sources measure the same ages, which is the point.

A 17-year-old appears in 5 of 7 sources — inside the Observatory’s 12–29 window.

  • includes a 17-year-oldObservatory population of interest (this report)
    12 to 29
  • includes a 17-year-oldYouth cardiovascular health index
    12 to 19
  • includes a 17-year-oldIndigenous youth risk-factor surveys (most indicators)
    12 to 17
  • includes a 17-year-oldIndigenous youth risk-factor surveys (some indicators)
    12 to 24
  • includes a 17-year-oldSudden cardiac arrest, competitive sport (Ontario)
    12 to 45
  • does not include a 17-year-oldNational chronic disease surveillance (adults)
    20 to 90 and over
  • does not include a 17-year-oldSports-related sudden cardiac arrest (multi-province)
    18 to 85
  • includes a 17-year-oldNunavik Inuit health survey
    16 to 90 and over

Source References 1, 6, 8, 13–15 (see Master Statistics Ledger and full reference list).

Important limitation Illustrates incompatibility of age bands across sources; does not itself represent a new statistic.

Explore 02

School cardiac readiness, province by province

Tap a province or territory for the status of its public-access AED policy and its school AED / CPR-AED curriculum, as identified by the review.

  • presentconfirmed legislation, regulation, or official mandate
  • partialfunding program, non-binding policy, or partial coverage
  • unclearconflicting or ambiguous information
  • not foundno clear, current, official source located by this review

British Columbia

Public-access AED policy
Evidence confidence: partial

ministerial order and ministry policy, not standalone legislation; secondary school target date passed, elementary/middle target not yet due as of evidence cutoff

Reference 27

School AED / CPR-AED curriculum
Evidence confidence: present

mandatory Grade 10 curriculum component

Reference 27

Not a scorecard. Categorical status only — no score or ranking is implied — and it should be reverified against current official sources before any operational use.

Show the full table and the report’s definitions

Categorical status only. PRESENT indicates confirmed legislation, regulation, or official mandate; PARTIAL indicates a funding program, non-binding policy, or requirement covering only part of the relevant schools or age range; NOT IDENTIFIED indicates this review could not locate a clear, current, official source, which reflects a limit of this review rather than confirmation that no policy exists; UNCLEAR indicates conflicting or ambiguous information. Each of Canada’s thirteen provinces and territories is listed separately; none are grouped. This matrix reflects the most recent identified official source as of the evidence cutoff of August 31, 2026, and should be independently reverified before any operational use. No numerical score or provincial ranking is implied or provided, and a PRESENT rating describes a formal policy requirement only, not confirmed on-the-ground implementation.

JurisdictionPublic-access AED policySchool AED / CPR-AED curriculum
British Columbia
Evidence confidence: partial

ministerial order and ministry policy, not standalone legislation; secondary school target date passed, elementary/middle target not yet due as of evidence cutoff ref. 27

Evidence confidence: present

mandatory Grade 10 curriculum component ref. 27

Alberta
Evidence confidence: unclear

this review found indications of a public-access defibrillation funding program but could not trace it to a citable, current official source

Evidence confidence: unclear
Saskatchewan
Evidence confidence: unclear
Evidence confidence: unclear

this review found indications of a school-focused cardiac-readiness initiative but could not trace it to a citable, current official source

Manitoba
Evidence confidence: present

Defibrillator Public Access Act ref. 24

Evidence confidence: partial

schools among designated public locations ref. 24

Ontario
Evidence confidence: partial

Defibrillator Registration and Public Access Act enacted; staged implementation ref. 25

Evidence confidence: unclear
Quebec
Evidence confidence: not identified

no public-access legislation located

Evidence confidence: unclear

this review found indications of a school AED installation initiative but could not trace it to a citable, current official source

New Brunswick
Evidence confidence: not identified
Evidence confidence: not identified
Nova Scotia
Evidence confidence: present

Defibrillators Act ref. 26

Evidence confidence: unclear

this review found indications of school AED funding but could not trace it to a citable, current official source

Prince Edward Island
Evidence confidence: not identified

no public-access legislation located

Evidence confidence: present

mandatory secondary curriculum component ref. 28

Newfoundland and Labrador
Evidence confidence: not identified
Evidence confidence: not identified
Yukon
Evidence confidence: not identified
Evidence confidence: not identified
Northwest Territories
Evidence confidence: not identified
Evidence confidence: not identified
Nunavut
Evidence confidence: not identified
Evidence confidence: not identified

Not a scorecard. Categorical status only — reverify against current official sources before any operational use.

Source Understand: Canada 2026, Investigation 06 — Canadian Cardiac Emergency Readiness Policy, by Jurisdiction (References 24–28).

Important limitation Categorical status only. PRESENT indicates confirmed legislation, regulation, or official mandate; PARTIAL indicates a funding program, non-binding policy, or requirement covering only part of the relevant schools or age range; NOT IDENTIFIED indicates this review could not locate a clear, current, official source, which reflects a limit of this review rather than confirmation that no policy exists; UNCLEAR indicates conflicting or ambiguous information. Each of Canada’s thirteen provinces and territories is listed separately; none are grouped. This matrix reflects the most recent identified official source as of the evidence cutoff of August 31, 2026, and should be independently reverified before any operational use. No numerical score or provincial ranking is implied or provided, and a PRESENT rating describes a formal policy requirement only, not confirmed on-the-ground implementation.

Explore 03

Canada at a glance — Behind the Number

The six figures the report leads with. Open any tile to see exactly where the number comes from and how far it can be trusted.

16.6%

met criteria for ideal cardiovascular health

Canadian youth aged 12 to 19 · Canada (nationally representative sample) · Data collected 2009 to 2010

Behind the number
Source
Maclagan et al., Canadian Heart Health Strategy and Action Plan cardiovascular health assessment (Reference 6).
Definition
Share meeting criteria for “ideal cardiovascular health”, a composite index drawing on the American Heart Association’s concept, applied to Canadians aged 12 to 19.
Population
Canadian youth aged 12 to 19
Geography
Canada (nationally representative sample)
Reference year
Data collected 2009 to 2010
Limitation
The original measurement is credible; the concern is its age. No comparable, more recent national measure was identified, so whether it still describes today’s youth is unknown (Observatory Finding 06).

8.21

per 1,000 live births

congenital heart disease lifetime birth prevalence

Live births · Quebec only · Data to 2005; published 2014

Behind the number
Source
Marelli et al., Quebec Congenital Heart Disease Registry (Reference 3).
Definition
Lifetime prevalence of congenital heart disease per 1,000 live births.
Population
Live births
Geography
Quebec only
Reference year
Data to 2005; published 2014
Limitation
The strongest Canadian congenital heart disease evidence describes one province, not the country. No pan-Canadian registry exists (Data Gap 02).

61%

no cardiology follow-up after age 18

People born with congenital heart disease in Quebec in 1983 · Quebec · Cohort born 1983, tracked with data to roughly 2005

Behind the number
Source
Mackie et al., Quebec population-based birth cohort (Reference 19).
Definition
Share of people born with congenital heart disease who had not received cardiology follow-up in the years after their eighteenth birthday.
Population
People born with congenital heart disease in Quebec in 1983
Geography
Quebec
Reference year
Cohort born 1983, tracked with data to roughly 2005
Limitation
Decades old and specific to Quebec: strong evidence that this discontinuity can and did happen, not a current national prevalence figure (Observatory Finding 03).

0.76

per 100,000 athlete-years

sudden cardiac arrest during competitive sport

Competitive-sport participants aged 12 to 45 · Ontario · 2009 to 2014

Behind the number
Source
Landry et al., Rescu Epistry, Ontario (Reference 8).
Definition
Incidence of sudden cardiac arrest during participation in competitive sport, per 100,000 athlete-years, with survival to hospital discharge.
Population
Competitive-sport participants aged 12 to 45
Geography
Ontario
Reference year
2009 to 2014
Limitation
Ontario-specific and spanning well past what most people mean by youth. It should not be generalized into a single “Canadian youth sudden cardiac arrest rate” (Data Gap 05).

66%

of the Quebec CHD population are now adults

People living with congenital heart disease · Quebec · As of 2010

Behind the number
Source
Marelli et al., Quebec Congenital Heart Disease Registry (Reference 3).
Definition
Share of the total congenital heart disease population who are adults.
Population
People living with congenital heart disease
Geography
Quebec
Reference year
As of 2010
Limitation
One province. Used in the report to illustrate the demographic shift behind Investigation 5, not as a national figure.

~60,000

out-of-hospital cardiac arrests per year (all ages)

All ages · Canada · 2024 report, drawing on national resuscitation registry evidence

Behind the number
Source
Heart and Stroke Foundation of Canada, Every Second Counts, 2024 (Reference 23).
Definition
Estimated annual out-of-hospital cardiac arrests, with survival of roughly 1 in 10.
Population
All ages
Geography
Canada
Reference year
2024 report, drawing on national resuscitation registry evidence
Limitation
National context only, not a youth statistic. The difference from the earlier ~40,000 estimate reflects changes in how events are counted, not necessarily more events.

Source Understand: Canada 2026, Executive Observatory Brief (References 3, 6, 8, 19, 23).

Important limitation These are not a single dashboard: they measure different things in different populations at different times, and are presented with population, geography, and data year intact.

Understand

The research report.

Seven investigations, six findings that survived the evidence test, and a register of what Canada cannot yet see — written to be read by anyone, not just researchers.

Published

Understand · Canada 2026 · First edition, pilot report

What Canada knows, and does not yet know, about the cardiovascular health of its young people.

39 pages · evidence cutoff August 31, 2026. Read it in the HeartWise reader, or download the PDF.

Act

The policy report.

Where the evidence becomes directions — organized by how strong the evidence is, including what HeartWise deliberately will not recommend yet.

In development

Act · Policy report

Coming soon.

The Policy report will turn the Understand findings into evidence-tiered directions, followed by a tracker for the policies they point at. It is being written now; the four tiers below are the seed, taken from the 2026 report.

Tier 1 · Evidence-supported opportunities
Structured, nurse-led transition support for young people with congenital heart disease moving from pediatric to adult cardiology care, which has direct Canadian trial evidence behind it.
Tier 2 · Promising directions requiring further evaluation
Telecardiology and eConsult access for remote and northern communities, and the Quebec registry’s automated model as a candidate for other provinces.
Tier 3 · Research and measurement priorities
Indigenous-led youth cardiovascular outcome measures, an updated national youth cardiovascular health index, and a shared wait-time definition for pediatric cardiology and adult congenital heart disease referral.
Tier 4 · Areas where HeartWise should not recommend action yet
Universal ECG screening, a ranked provincial readiness scorecard, claims about Indigenous youth outcomes, and a single-number youth sudden cardiac arrest estimate.

Partner with the Observatory.

Researchers, clinicians, health authorities, sponsors, and media: the 2027 edition’s research priorities are already named. Help answer them.